The national registry for organ donation & transplant is as follows:-
I – Organ Transplant Registry:
The Organ Transplant Registry shall include demographic data about the patient waiting for transplant (Organ/hospital wise waiting list), donor (Living Donor including Related Donor, Other than Near Related Donor, Swap Donors, and Deceased Donor), hospitals, follow up details of recipient and donor etc., and the data shall be collected from all retrieval and transplant centers.
Data collection may preferably be through a web-based interface or paper submission and the information shall be maintained both specific organ wise and also in consolidated formats.
The hospital or Institution shall update its website regularly in respect of the total number of the transplantations done in that hospital or institution along with reasonable detail of each transplant and the same data should be accessible for compilation, analysis and further use by authorized persons of respective State Governments and Central Government.
II – Organ Donation Registry:
The Organ Donation Registry shall include demographic information of donor (both living and deceased), hospital, height and weight, occupation, primary cause of death in case of deceased donor, associated medical illnesses, relevant laboratory tests, donor maintenance details, driving license or any other document of pledging donation, donation requested by whom, transplant coordinator, organs or tissue retrieved, outcome of donated organ or tissue, details of recipient, etc.
III – Tissue Registry:
The Tissue Registry shall include demographic information on the tissue donor, site of tissue retrieval or donation, primary cause of death in case of deceased donor, donor maintenance details in case of brain stem dead donor, associated medical illnesses, relevant laboratory tests, driving license or any other document pledging donation, donation requested by whom, identity of counsellors, tissue(s) or organ(s) retrieved, demographic data about the tissue recipient, hospital conducting transplantation, transplant waiting list and priority list for critical patients, if these exist, indication(s) for transplant, outcome of transplanted tissue, etc.
IV – Organ Donor Pledge Registry:
The National Organ Donor Register is a computerized database which records the wishes of people who have pledged for organ and tissue donation. A person during their life can pledge to donate their organ(s) or tissue(s) after their death through Form 7 and submit it in paper or online to the respective networking organization and pledger has the option to withdraw the pledge through intimation.
There are many hospitals and organizations those are also maintaining the list of persons who have pledged organ donation with them, will be passed to National Organ & Tissue Transplant Organisation for National Register.